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Topic · Clinical Psychology · Psychology

Family and Disability Support Research

OpenAlex topic; a paper is listed when OpenAlex scores it at least 0.5 for this topic.

2 papers

"They don't know how to live with a child with these conditions, they can't understand...": The lived experiences of parenting a child with a genetic neurodevelopmental disorder.

Karen Jaqueline Low, Georgia Treneman‐Evans, Sarah L. Wynn, Jenny C Ingram

This paper explores the lived experiences of parents raising children with genetic neurodevelopmental disorders, identifying key challenges and the need for psychosocial support.

medRxiv · Jul 24, 2024 · PreprintGenetic & Genomic Medicine

QUALITY OF LIFE IN MOTHERS OF CHILDREN WITH MICROCEPHALY IN THE NORTHEAST OF BRAZIL

Caren Cristina Freitas Fernandes, Caí­que Jordan Nunes Ribeiro, Anne Caroline Santos Melo de Araújo Cândido, Mariângela da Silva Nunes, Daniele Vieira Dantas, José Antônio Barreto Alves, Alanna Gleice Carvalho Fontes Lima, Heloísa Salvador dos Santos Pereira, Jonas Santana Pinto, Maria do Carmo Oliveira Ribeiro

This study compares the quality of life of mothers of children with microcephaly to mothers of children with normal neuropsychomotor development, finding significant differences in environmental quality of life domains.

bioRxiv · Jun 7, 2019 · PreprintNeuroscience