Defining the Critical Educational Components of Informed Consent for Genetic Testing: Views of US-Based Genetic Counselors and Medical Geneticists
Miranda L. G. Hallquist, Maia J. Borensztein, Curtis R. Coughlin, Adam H. Buchanan, W. Andrew Faucett, Holly Landrum Peay, Maureen E. Smith, Eric P. Tricou, Wendy R. Uhlmann, Karen E. Wain, the CADRe workgroup, Kelly E. Ormond
The paper surveys genetic professionals on the sufficiency of core informed consent concepts for genetic testing, finding high agreement on their adequacy for informed decision-making.
European Journal of Human Genetics · Jun 12, 2023Peer-reviewedGenetic & Genomic Medicine