Kelly E. Ormond

The paper surveys Swiss public attitudes towards gene editing therapies, finding support for therapeutic uses but not enhancements, and identifying factors like age, gender, and religion influencing opinions.

The paper explores researchers' perspectives on returning multi-omics results to participants in the MoTrPAC study, highlighting both support and concerns about ethical, logistical, and communication challenges.

The paper surveys genetic professionals on the sufficiency of core informed consent concepts for genetic testing, finding high agreement on their adequacy for informed decision-making.

This study identifies core concepts essential for informed consent in genetic testing through a Delphi process involving experts in genetics and bioethics.

ClinGen and the PGS Catalog expand the GRIPS guideline into a 22-item Polygenic Risk Score Reporting Statement covering study populations, model construction, evaluation, and clinical interpretation.

The paper highlights the lack of standard definitions and protocols for collecting and using race, ethnicity, and ancestry data in clinical genetics and precision medicine.